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Meet Suhani

  • Writer: Parsa Abdi
    Parsa Abdi
  • Aug 6, 2024
  • 2 min read

My Vitiligo journey began when I was 10 years old, and I am now 32. My parents noticed the spots early on and quickly consulted doctors and started me on medication. I did not have any relatives or anyone around me with vitiligo.

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My childhood memories are dominated by numerous medications, creams, powders, phototherapy sessions, and frequent trips to hospitals and clinics.

I had dietary restrictions, but none worked, all this only made me weaker; in fact, the Vitiligo spread even more due to the medications.

Taking 10-13 tablets a day made me hate water and meds, leaving me with a constant nauseating sensation and burning discomfort throughout my school and college days.

Growing up in a South Asian country with Vitiligo was challenging. I hid my condition from those around me for a long time. This pain affected my ability to form friendships and interact normally. I was often angry, inattentive, and preoccupied with the fear of being treated differently. This significantly changed my identity and thoughts, making me a very different individual. Every action I took was influenced by what I thought others would think of me.

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When I started losing pigment in places I couldn't hide or cover, I received constant stares from everyone. I lacked the courage to stare back then, but now, I do. Throughout it all, my family has been a constant support.

I am learning to love myself and my skin, to ignore what others think about me, and to ignore those who look at me multiple times while passing by.

I am improving in dealing with anxiety attacks. I have started to socialize with lots of effort put into it.

Yes, there are days when I feel completely down, but I fight to overcome it every single time….

Despite everything going on in my life, I never ignored my studies. I always excelled and remained committed to achieving all that I and my parents dreamed of. I aspire to travel the world with my partner.

 
 
 

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